The World Orphan Drug Congress brings together leading pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers. The conference is a place to meet and brainstorm ways to advance orphan drug development and improve access to life-saving therapies.

Engaging with Rare Disease Patient Communities and Purpose Driven Innovation
July 12, 2022, 3:35-3:55pm EDT

Moderated by: Michael Rice, Senior Vice President, Head of Advanced Therapeutics, Lumanity


  • Nick Sireau, Chair and Chief Executive Officer, AKU Society
  • Nadia Bodkin, OLM DEI Expert, Rare Advocacy Movement
  • Amy Nicole Nayar, VP US Patient Advocacy and Government Affairs, Novartis Gene Therapies

Conference Website

Contact us to meet during the conference