We’re heading to the International Society for Quality of Life Research (ISOQOL) 33rd Annual Conference, where researchers, clinicians, industry leaders, patient research partners, and regulatory officials from around the world come together to advance the science of quality-of-life assessment and patient-reported outcomes (PROs).
This year’s theme “Evaluate, Educate, Regulate” explores how the field can keep pace with the growing role PRO data plays in research, care, and policy. As interest in quality-of-life assessments continues to accelerate, the conference will dig into what it takes to expand the reach and strengthen the methodological rigor of PRO work across evaluation, education, and regulatory practice.
Members of our Patient-Centered Outcomes (PCO) team will be on the ground, attending sessions and as well as presenting a poster. We’re there to listen, learn, and connect directly with the community shaping the future of PRO and quality-of-life research.
What We’re Presenting
Tuesday, October 20, 2026
9:35 AM – 10:15 AM (CET): Poster Session 201
Capturing the full patient experience with gene therapies: a disease-agnostic conceptual model to inform PRO measure development
Hribal E, Egan S, O’Mara A, Turner-Bowker D, Swinburn P, Gauthier M
Meet with Our Experts
If your organization is navigating challenges around patient-centered outcomes, whether it’s data collection, methodology, implementation, or getting buy-in across stakeholders, we’d love to chat. Our team is setting aside time during the conference for one-on-one conversations about PCO needs and challenges.
Reach out to schedule time with us at the conference.
Elizabeth Hribal
Associate Director, Patient Centered-Outcomes
Adrian Jewett
Associate Director, Patient Centered-Outcomes