Patient Strategy & Engagement

Transforming Patient Experiences Into Co-Created Solutions

Elevate Patient Voices to Drive Meaningful Change

Our deep understanding of the patient-advocacy landscape helps you prioritize your community’s needs and turn patient experiences into effective co-created solutions.

Tap into our extensive network of patients, advocacy groups, healthcare providers (HCPs), and multidisciplinary experts to bring authentic human experiences to your programs. Make patients equal stakeholders throughout the development and commercialization process through early involvement and continuous collaboration. Partner with us to integrate patient insights into your strategies, driving breakthrough value and ensuring your outcomes are accessible, inclusive, and impactful.

Our Offerings

Patients are more than just candidates for clinical trials. Including them in the design of drug-development programs can help to ensure that study protocols are not overly burdensome, endpoints are clinically relevant, and treatment benefits are properly assessed. By putting patients at the center of our research, we can help you:
Improve trial design/protocols, recruitment, and retention by better understanding barriers to participation and adherence to study procedures
Identify, modify, and develop new clinical outcomes assessments (COAs) to document treatment benefits from the patient’s perspective
Interact with key regulatory bodies (such as the FDA and EMA) to ensure the voice of patients is adequately captured in clinical trials, which may also inform labeling claims based on patient-centered endpoints
Conduct interviews with patients during clinical trials to document their burden of disease and diagnostic journey (entry interviews) and the level of change they experienced while on treatment throughout the trial (exit interviews)
Regulators and health technology assessment bodies are increasingly embracing patient experience data and real world evidence, and this has helped to incorporate the voice of patients, their families, and their caregivers into product development. Our teams have deep and diverse experience in:
Patient and caregiver market research
Identifying the burden of disease
Patient needs assessment
Patient profiling and segmentation
Patient communication evaluation
Social media listening and ad hoc/syndicated reports with Sonar
Patient advisory boards and councils
Patient experience data planning
User experience and design optimization
Real world evidence design and generation
Clearly understanding and mapping the patient journey can provide insights into the lived experience of those with a disease, validate diagnostic and treatment management processes, and identify primary stakeholders and key decision influencers. Tap into Pathway—our web-based digital mapping tool—or allow us to design the patient journey research that is needed. We have deep experience creating and conducting:
Patient experiential journeys (custom or via Pathway)
Patient treatment flows
Identification of patient and HCP relationship dynamics and disconnects
Treatment adherence and experience research
Patient-support program development and optimization research
Successful development and launch of a medical innovation starts with a patient-centric vision that is supported by agile, innovative strategies and a robust plan. Our patient-engagement experts can help you with:
Patient stakeholder–engagement strategy
Point-of-care–engagement strategies
Patient scientific platform, messaging, and lexicon development
Patient publication planning
Multistakeholder advisory councils/panels
Patient advocacy development
Ongoing patient and patient advocacy–community engagement ensures that their needs are reflected in every phase of drug development, from research program design and education to supporting timely adoption, improving ongoing benefit-risk assessments, and identifying possibilities for further development. We can help with:
Patient education
Patient communications and publications
Marketing support
Multi- and omnichannel strategy, including social media
Digital health strategy and applications
Patient-support programs
Patient-advocacy development and partnerships
HTA assessments and engagement
Metrics development and project assessment
Marketing campaigns that are grounded in behavioral science expertise
Patients are more than just candidates for clinical trials. Including them in the design of drug-development programs can help to ensure that study protocols are not overly burdensome, endpoints are clinically relevant, and treatment benefits are properly assessed. By putting patients at the center of our research, we can help you:
Improve trial design/protocols, recruitment, and retention by better understanding barriers to participation and adherence to study procedures
Identify, modify, and develop new clinical outcomes assessments (COAs) to document treatment benefits from the patient’s perspective
Interact with key regulatory bodies (such as the FDA and EMA) to ensure the voice of patients is adequately captured in clinical trials, which may also inform labeling claims based on patient-centered endpoints
Conduct interviews with patients during clinical trials to document their burden of disease and diagnostic journey (entry interviews) and the level of change they experienced while on treatment throughout the trial (exit interviews)
Regulators and health technology assessment bodies are increasingly embracing patient experience data and real world evidence, and this has helped to incorporate the voice of patients, their families, and their caregivers into product development. Our teams have deep and diverse experience in:
Patient and caregiver market research
Identifying the burden of disease
Patient needs assessment
Patient profiling and segmentation
Patient communication evaluation
Social media listening and ad hoc/syndicated reports with Sonar
Patient advisory boards and councils
Patient experience data planning
User experience and design optimization
Real world evidence design and generation
Clearly understanding and mapping the patient journey can provide insights into the lived experience of those with a disease, validate diagnostic and treatment management processes, and identify primary stakeholders and key decision influencers. Tap into Pathway—our web-based digital mapping tool—or allow us to design the patient journey research that is needed. We have deep experience creating and conducting:
Patient experiential journeys (custom or via Pathway)
Patient treatment flows
Identification of patient and HCP relationship dynamics and disconnects
Treatment adherence and experience research
Patient-support program development and optimization research
Successful development and launch of a medical innovation starts with a patient-centric vision that is supported by agile, innovative strategies and a robust plan. Our patient-engagement experts can help you with:
Patient stakeholder–engagement strategy
Point-of-care–engagement strategies
Patient scientific platform, messaging, and lexicon development
Patient publication planning
Multistakeholder advisory councils/panels
Patient advocacy development
Ongoing patient and patient advocacy–community engagement ensures that their needs are reflected in every phase of drug development, from research program design and education to supporting timely adoption, improving ongoing benefit-risk assessments, and identifying possibilities for further development. We can help with:
Patient education
Patient communications and publications
Marketing support
Multi- and omnichannel strategy, including social media
Digital health strategy and applications
Patient-support programs
Patient-advocacy development and partnerships
HTA assessments and engagement
Metrics development and project assessment
Marketing campaigns that are grounded in behavioral science expertise

Our Impact

300+
Insight-generation projects (market research, COA, ad boards) in the last 3 years
30+
Projects supported by our Patient Council members per year
3
Clinical trials have adjusted their protocols based on our insights
150+
Years of combined advocacy experience (including staff trainings for PFMD, EUPATI, and EUCAPA)
Our Perspectives View all perspectives
Let's Talk

We would love to hear how our patient engagement experts can help you.

John Tarplee Global Practice Lead, Medical Strategy & Communications
Read more about John Tarplee
Siobhan Barry Vice President, Client Strategy, Patient Engagement
Read more about Siobhan Barry
Susan Daniels Senior Vice President, Patient Strategy and Engagement
Read more about Susan Daniels
Sarah Davies Senior Director, Patient Strategy
Read more about Sarah Davies
Christopher J Evans MPH, PhD President, Patient-Centered Outcomes
Read more about Christopher J Evans
Gavin Jones Vice President, Patient Strategy, Communications
Read more about Gavin Jones
Marissa Poli President, Creative Strategy and Engagement
Read more about Marissa Poli
Angela Wheeler President, Insight US
Read more about Angela Wheeler