The PHARMO Institute, part of Lumanity, delivers research insights in Real World Evidence Expertise in Hereditary Angioedema, and the PHARMO Data Network offers great research potential for this population:

  • ~150 patients identified between 1998-2023 within the general practitioner (GP) database or outpatient pharmacy database
  • Real world data (RWD) is available to address a wide range of use cases from treatment patterns, disease progression and long term safety studies
  • Unique linkages to clinical laboratory data to identify the target cohort via C1-INH protein testing

We invite you to put our data to the test. E-mail us at contact@lumanity.com to discuss your research needs.

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